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Dedicated to finding treatments and cures for paralysis caused by spinal cord injury and other neurological disorders. It also works to improve the quality of life for people living with disabilities. 1-800-225-0292 Paralysis Resource Guide
https://www.christopherreeve.org/
Co-founded by Christopher and Dana Reeve as they struggled to find resources to help their family find a new normalcy after his spinal cord injury, the National Paralysis Resource Center is focused on the day-to-day challenges of living an independent and fulfilling life. Today, the NPRC supports the Reeve Foundation’s twin missions to provide “Today’s Care” and strive for “Tomorrow’s Cure.”
The National Paralysis Center is a free, comprehensive, national source of informational support for people living with paralysis and their caregivers. Our primary goals are to foster involvement in the community, promote health, and improve quality of life.
1-800-225-0292
The MSKTC is a national center that helps facilitate the knowledge translation process to make research meaningful to those with Spinal Cord Injury, Traumatic Brain Injury and Burn Injury. 202-403-5600
Spinal Cord Essentials has easy to understand patient education information sheets.
Support & Peers
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The CaringBridge is a website that allows people to get updates and provide support to persons with a condition. 651-789-2300
618-724-5484
CareCure is an online support community that organizes spinal cord injury related forums with input from a large community of contributers.
FacingDisability.com connects families who suddenly have to deal with a spinal cord injury to people like them who have already been there.
737 N. Michigan Ave.
Suite 1560
Chicago, IL 60611
Phone: 312-284-2525
Email: info@facingdisability.com
info@gusu2cure.org
SCI peer information library on technology: an information resource describing the assistive technology experiences of individual with quadriplegia.
1-800-962-9629
This is a social/support group for people who have survived a gunshot and are now paralyzed from a spinal cord injury.
Please request Zoom link at RSA@rochesterspinalassociation.org
Financial Assistance
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501(c)3 non-profit organization that provides financial support for vehicle modifications for individuals living with spinal cord injuries. 970-241-4656
Typical charitable grants to individuals have provided home and transportation accessibility assistance to those living with mobility disabilities with preference purpose going to those living with spinal cord injury.
(262) 547-2083
Awards scholarships to Spinal Cord Injury Patients in need of financial assistance at approved recovery based therapy facilities.
(214) 417-8466
The Empowerment Fund provides resources and inspiration to those who suffer a life-altering injury such as spinal cord injuries, traumatic brain injuries, amputation or other mobility-limiting injuries that occurred in an athlete’s lifetime.
(530) 562 4270
800-642-8399
Long term care for a person with a disability can become expensive. Non-medical expenses such as caregiving and housing are often not covered by insurance. HelpHOPELive teaches patients and families how to set up a fundraising drive to support these out of pocket costs. This nonprofit organization serves as an intermediary for managing donations and supplying documentation required for tax purposes.
Persons who have had an organ transplant or traumatic event resulting in spinal cord injury, brain injury or amputation are eligible for this program.
The purpose of the individual grant program is to increase participation in adaptive sports and recreation activities and improve the quality of life for individuals living with SCI.
802-846-5298
Enhancing the life of individuals with spinal cord injuries and their families by providing adaptive sports equipment and assistive technology. Examples of eligible items include upgrade and maintenance of wheelchairs, vehicle modifications (i.e., hand controls or lifts), small home modifications including ramp and lift installation, computers, and other adaptive equipment. i
nfo@travisroyfoundation.org
No phone provided
Equipment, supplies, and services for everyday living such as wheelchairs and adaptive equipment.
(661) 803-3700
Improving the quality of life through sports, funding, motivation and events.
813-743-2827
Fundraising and scholarships to assist with the financial strains that come with a new and ongoing injury.
(213) 986-6486
United Spinal is accepting applications for COVID-19 Relief grants of $500 for individuals with spinal cord injury/disease (SCI/D) who are experiencing financial difficulty due to circumstances related to COVID-19 | 718-803-3782 . Apply at and contact askus@unitedspinal.org with any questions.
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- Pediatric SCI resources, facilities, publications and special concerns.
The Four Levels of Injury
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Tetraplegia or Quadriplegia:
These terms generally describe the condition of a person with a spinal cord injury in the cervical region. This individual can experience a loss of feeling and/or movement in their head, neck, shoulder, arms and/or chest, stomach, hips, legs, and feet.
Paraplegia:
A general term describing the condition of a person who has lost feeling and/or is not able to move the lower parts of his/her body. The body parts that may be affected are the chest, stomach, hips, legs, and feet. Any thoracic level injury will cause paraplegia.
Incomplete Spinal Cord Injury:
When an injury is incomplete, the spinal cord’s ability to carry messages to or from the brain is not completely lost. Often some sensation and movement remains below the level of injury.
Complete Spinal Cord Injury:
In a complete spinal cord injury there is loss of sensation and motor function below the level of injury. Complete injuries are the most devastating and present with greater functional loss than an incomplete injury at a similar cord level.
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Disability Media Network
Streaming media platform for disabled filmmakers and disabled actors to share their stories and distribute their work.
For More Information see the Shirley Ryan Abilitylab Spinal Cord Innovation Center
