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Listing: Stroke Resources for Patients and Families

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Media Type

Online Resource

Reviewed Date

Oct 11, 2024

Body

A stroke occurs when a blood vessel that carries oxygen and nutrients to the brain is either blocked by a clot or bursts (or ruptures).  When that happens, part of the brain cannot get the blood (and oxygen) it needs, so it and brain cells die.  This is a list of consumer health resources available online to provide education, support and wellness, and information on research.

The American Stroke Association is solely focused on reducing disability and death from stroke.
The website has information for public and professionals on effects of stroke, life after stroke, help and support groups, healthy living, and local outreach.

1-888-478-7653

  • Tips for daily living:
  • Let's Talk About Stroke  is a series of downloadable Patient Information Sheets that presents information in a question-and-answer format that's brief, easy to follow and easy to read.  Topics cover Life After Stroke, Prevention, Risk Factors, Types of Stroke, Warning Signs, and Diagnosis:
  • Physical and emotional effects: 
  • Caregiver resources: 

CDC is the official Web site of the Centers for Disease Control and Prevention (CDC).  Here you can find up-to-date information on stroke risk factors, prevention, treatment, and CDC supported public health initiatives.

800-232-4636

The National Institutes of Health through the National Institute of Neurological Disorders and Stroke (NINDS) developed the Know Stroke. Know the Signs. Act in Time. campaign to help educate the public about the symptoms of stroke and the importance of getting to the hospital quickly.  Patient and caregiver education fact sheets found here: The website also includes info on research and clinical trials.

(800) 352-9424

For more than five decades, the Epilepsy Foundation has shone a light on epilepsy. The Foundation and its nationwide network of nearly 50 partners connects people to treatment, support and resources; leads advocacy efforts; funds innovative research and the training of specialists; and educates the public about epilepsy and seizure first aid.

(800) 332-1000

Created in 1946 as a grassroots effort in Illinois to help people with epilepsy, the Epilepsy Foundation of Greater Chicago is a not-for-profit, incorporated in Illinois, serving 43 counties, offering counseling, advocacy and educational services to people with epilepsy, their families, and the communities in which they live.

(312) 939-8622

Additional Support:

Tedy's Team
Raising awareness of stroke and heart disease while supporting survivors on their journey, giving them the means for a comeback.

info@tedysteam.org
508.492.5367

Stroke Support Groups - RUSH Chicago
Third Thursdays from 2-3pm

(312) 563-2994.

Stroke Survivors Empowering Each Other (SSEEO)
SSEEO is a non-profit organization building a community to encourage, support and guide stroke survivors and families while providing resources to help meet the challenges of stroke.

888-988-8047

Life After Stroke 
Radio Podcast Support with Christopher Ewing

Available on Apple, Spotify, Google, and heart


As a trusted resource in your post-stroke journey, the created a recipe booklet specifically with adult stroke survivors in mind. The recipes are designed for regular food texture; however, each recipe includes modifications in case your swallowing abilities have been affected due to your stroke. 

 

Pediatric Stroke

 pdf from 



Your baby or child has just received a diagnosis of hemiplegia or hemiparesis due to an early stroke or a different cause. You’re suddenly thrust into the world you did not expect. How do you help your child live a full life while experiencing your own roller coaster of emotions? You are not alone.

Children’s Hemiplegia and Stroke Association
4101 W. Green Oaks
Suite 305-149
Arlington, TX  76016

Support Groups

Stroke Support Groups - RUSH Chicago
Third Thursdays from 2-3pm (312) 563-2994.

Stroke Survivors Empowering Each Other (SSEEO) - SSEEO is a non-profit organization building a community to encourage, support and guide stroke survivors and families while providing resources to help meet the challenges of stroke.
888-988-8047

Life After Stroke radio Podcast Support with Christopher Ewing

Available on Apple, Spotify, Google, and iheart

Caregiver resources: The Stroke Association has a list of support for families 

 

Books

You may also be interested in:

Listing: Stroke Camps (Adults)

 

This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan 汤头条app, and does not replace the advice of a qualified healthcare professional.  See here  for further details.
? Shirley Ryan 汤头条app (formerly Rehabilitation Institute of Chicago)
Henry B. Betts LIFE Center – (312) 238-5433

Image by Bret Kavanaugh from Unsplash.com

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