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PROMIS – Ability to Participate in Social Roles and Activities

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Purpose

The PROMIS Adult Ability to Participate in Social Roles and Activities profile is a 35-item self-report measure designed to assess perceived ability to perform one’s usual social roles and activities.

Link to Instrument

Acronym PROMIS-APSRA

Area of Assessment

Communication
Life Participation
Quality of Life
Occupational Performance
Social Relationships

Assessment Type

Patient Reported Outcomes

Cost

Free

Actual Cost

$0.00

Cost Description

If using Computer Adaptive testing (CAT), NIH toolbox is $499.99

Key Descriptions

  • 35 items in full version; also 4, 6, and 8-item short form versions
  • When administering a short form, instruct participants to answer all of the items presented. When administering the measure via CAT, participant responses guide the system’s choice of subsequent items from the full item bank.
  • Minimum and maximum scores depends on the form being used
  • Scoring: Item-levels are scored numerically for an individual's response to each question. PROMIS recommends the best way to find the total raw score is using the free HealthMeasures Scoring Service (https://www.healthmeasures.net/images/PROMIS/manuals/PROMIS_Ability_to_Participate_in_Social_Roles_and_Activities_Scoring_Manual.pdf) or a tool that can automatically calculate scores. Scores can also be added up by hand to find the total raw score.

    Then the raw score is converted to a T-score using the table in the Appendix of the link below. This standardizes the score with a mean of 50 and standard deviation of 10. Being above or below the standard deviation could be desirable or undesirable based on the domain being measured.
  • Higher scores means more of the concept being measured, i.e. more ability to participate.

Number of Items

35 full version

4, 6, and 8 item short form versions

Equipment Required

  • Paper and pen for paper test; iPad Air or iPad Air 2 with Wi-Fi capacity that is running iOS version 9.4 or higher; or Computer

Time to Administer

5-20 minutes

Required Training

No Training

Age Ranges

Adult

18 - 64

years

Elderly Adult

65 +

years

Instrument Reviewers

Holly O’Hearn, SPT

Jensyn Bradley SPT, ATC, LAT

Chi-Lun Chiao, SPT

Holt McPherson, SPT

Kenna Peters, SPT

Corinne Woodbine, SPT

Duke University, School of Medicine, Division of Physical Therapy.

Updated 4/9/2020 by Jing Cao, Rehabilitation Psychology student under the direction of Timothy Tansey, PhD, Department of Rehabilitation Psychology and Special Education, School of Education, University of Wisconsin-Madison. 

Updated 7/31/2023 by Kevin Fearn, MS, Shirley Ryan 汤头条app

 

 

ICF Domain

Activity
Participation

Measurement Domain

Participation & Activities

Considerations

  • PROMIS measures can be used in the general population and with adult populations with a chronic condition(s)
  • PROMIS measures have a larger range of measurement than most conventional measures, decreasing floor and ceiling effects as a result
  • PROMIS measures have fewer items than conventional measures, thereby decreasing respondent burden. When used as computer adaptive tests, PROMIS measures usually require 4-6 items for precise measurement of health-related constructs
  • Translations: The assessments are available via PDF in Spanish and can be obtained in other languages by contacting translations@Healthmeasures.net

Non-Specific Patient Population

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Cut-Off Scores

Dutch and U.S. General Populations: (Terwee & Roorda, 2023; = 1002 (Wave 3 – Ability to participate & satisfaction with participation, sample representative of Dutch adult population age ≥ 18, mean age = 51 (17), female = 52%); = 940 (U.S. general population sample of PROMIS wave 1 data from HealthMeasures Dataverse repository; 35 item Dutch-Flemish PROMIS v2.0 Ability to Participate in Social Roles and Activities item bank with respondents additionally asked to rate their level of health for the domain based on a single item)

Distribution-based thresholds for PROMIS Ability to Participate in Social Roles and Activities

Threshold (based on SD)

Dutcha

U.S.a

Within normal limits

>46

>45

Mild

41-46

40-45

Moderate

32-41

30-39

Severe

<32

<30

 

Anchor-based thresholds for PROMIS Ability to Participate in Social Roles and Activities

Threshold (based on self-reported limitations)

Dutch mean T-score (SD)a

No limitations

56.8 (7.7)

Mild

49.3 (6.4)

Moderate

44.1 (6.7)

Severe

35.7 (7.1)

aHigher scores represent more ability to participate; SD = Standard Deviation

Normative Data

 

Dutch and U.S. General Populations: (Terwee & Roorda, 2023)

PROMIS Ability to Participate in Social Roles and Activities Dutch Reference Values by Age and Gender Compared with the U.S. Reference Population

 

Dutch mean T-score (SD)a

U.S. mean T-score (SD)a

Total

50.6 (9.5)

50.0 (9.8)

Gender

 

 

  Male

51.2 (9.5)

49.6 (9.2)

  Female

50.1 (9.5)

49.8 (10.1)

Age

 

 

  18-34

51.5 (9.5)

49.7 (9.3)

  35-44

48.4 (9.6)

51.6 (8.3)

  45-54

51.1 (9.4)

47.5 (10.8)

  55-64

49.4 (9.9)

49.2 (9.8)

  65-74

51.4 (8.4)

51.0 (9.8)

  75+

52.5 (11.0)

50.0 (8.0)

aHigher scores represent more ability to participate; SD = Standard Deviation

 

 

 

 

Internal Consistency

Dutch General Population: (Terwee et al., 2019; = 1002; mean age = 51 (17); sample representative of Dutch adult population age ≥ 18; mean age  = 51 (17); female = 52%; 35 item Dutch-Flemish PROMIS v2.0 Ability to Participate in Social Roles and Activities item bank; subjects administered full item bank, 8-item short form, standard computerized adaptive test (CAT) with SE=3 and max 12 items, and fixed 8-item CAT)

  • Excellent: Cronbach’s alpha for full item bank > 0.90* for 92% of the participants
  • Excellent: Cronbach’s alpha for short form > 0.90* for 85% of the participants
  • Excellent: Cronbach’s alpha for standard CAT > 0.90* for 92% of the participants
  • Excellent: Cronbach’s alpha for fixed 8-item CAT > 0.90* for 82% of the participants

*Scores higher than 0.9 may indicate redundancy in the scale questions.

 

 

 

 

 

Rheumatic Disease

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Construct Validity

Systemic Lupus Erythematosus: (Katsuri, et. al., 2018, n = 204, 92.6% female, mean age = 40.0 (13.2), recruited from outpatient clinic)

 

Convergent and discriminant validity of PROMIS10. Values are Spearman correlations.

Outcome Measures

PROMIS Global Physical Health, n = 199

PROMIS Global Mental Health, n = 187

??PROMIS ability to participate in social roles CAT

0.74

0.65

Cardiovascular Disease

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Responsiveness

Cardiovascular Disease: (Hahn et al., 2023; = 272; patients at 12 U.S. sites enrolled in hospital or outpatient clinic prior to planned left ventricular assist device (LVAD) implantation; PROMIS Ability to Participate in Social Roles and Activities v. 2.0)

  • Change in PROMIS scores were mapped to change in other variables with two sets of anchor change scores calculated: the difference between pre-implant and Month 3 and the difference between Months 3 and 6. Independent Better, No Change, and Worse groups were formed for each anchor change score. The responsiveness indicators (anchors) were:
    • Kansas City Cardiomyopathy Questionnaire (KCCQ-12): + or – 5 points considered Better or Worse
    • EuroQol 5-Dimension, 3 Level (EQ-5D-3L): for each dimension, + or – at least one level considered Better or Worse (+ or – at least 10 points for Visual Analogue Scale)
    • PROMIS Global Health items: + or – 1 point considered Better or Worse
    • Global Rating of Change: “a lot better” and “a little better” combined into “better”; “a lot worse” and “a little worse” combined into “worse.”

Mean changea scores from pre-implant to 3 months post-implant for PROMIS Ability to Participate in Social Roles and Activities, by change in responsiveness indicator (anchor)

Responsiveness indicatorb

Better

Same

Worse

pc

KCCQ-12 Social Limitation

6.6 (1.2)

2.2 (3.3)

0.8 (2.8)

0.107

EQ-5D-3L Usual Activities

9.2 (1.6)

3.1 (1.5)

-1.3 (3.2)

0.003

PROMIS Social Activities

8.0 (1.3)

3.4 (1.7)

-1.5 (2.0)

<0.001

Global Rating of Change

9.2 (1.1)

2.7 (1.8)

-2.5 (1.9)

<0.001

 

Mean changea scores from 3 to 6 months post-implant for PROMIS Ability to Participate in Social Roles and Activities, by change in responsiveness indicator (anchor)

Responsiveness indicatorb

Better

Same

Worse

pc

KCCQ-12 Social Limitation

2.7 (1.3)

-2.3 (2.4)

-3.0 (1.7)

0.020

EQ-5D-3L Usual Activities

1.2 (2.0)

-0.5 (1.3)

-1.5 (2.2)

0.644

PROMIS Social Activities

4.5 (1.3)

0.9 (1.3)

-5.5 (1.5)

<0.001

Global Rating of Changed

---

---

---

---

aMean Change: lease squares mean (standard error).

bBetter, Same, and Worse categories were defined by changes in the anchor; see above.

cP value for overall comparison of 3 categories (Better, Same, Worse)

dGlobal rating of change was not measured at 6 months.

 

 

Immune System Disorders

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Test/Retest Reliability

Rheumatoid Arthritis: (Bartlett et al, 2015, n = 177, 82% female, 83% White; 24% had an educational attainment of high school or lower; mean age = 55.5 (13.3) years, mean disease duration = 11.6 (9.5) years, version 2.0 computerized adaptive test version of Ability to Participate in Social Roles & Activities).

  • Acceptable test-retest reliability for  Ability to Participate in Social Roles & Activities scale (ICC = 0.747)

 

Systemic Sclerosis-Associated Interstitial Lung Disease: (Fisher et al., 2019; n = 73; mean age = 51.9(11.8) years; female = 80.8%; mean disease duration after first non-Reynaud’s symptoms = 7.9 (8.3) years; Promis-29 v2.0).

  • Poor test-retest reliability for Ability to Participate in Social Roles & Activities Scale (Social Role Domain) of PROMIS-29 (ICC = 0.65) Domains.

 

 

Internal Consistency

Rheumatoid Arthritis: (Bartlett et al, 2015).

  • Excellent internal consistency for Ability to Participate in Social Roles & Activities Scale  (Cronbach’s alpha = 0.985*)

Systemic Sclerosis-Associated Interstitial Lung Disease (Fisher et al., 2019).

  • Excellent internal consistency for Ability to Participate in Social Roles & Activities Scale (Social Domain) of PROMIS-29: Cronbach’s Alpha = 0.95*

*Scores higher than 0.9 may indicate redundancy in the scale questions.

 

 

Criterion Validity (Predictive/Concurrent)

Concurrent validity:

Systemic Sclerosis-Associated Interstitial Lung Disease (Fisher et al., 2019).

  • Excellent  concurrent validity between Ability to Participate in Social Roles & Activities Scale (Social Role Domain) of PROMIS-29 and Short Form-36 Social Domain (= 0.75)  

 

 

Construct Validity

Convergent validity:

Rheumatoid Arthritis: (Bartlett et al, 2015).

  • Strong correlation between PROMIS-29 Ability to Participate in Social Roles and Activities Scale and Satisfaction with Social Roles & Activities (= 0.744), Physical Function (= 0.698), Pain Interfere (= -0.640), and Fatigue (= 0.607)
  • Adequate correlation between PROMIS-29 Ability to Participate in Social Roles and Activities Scale and Pain Intensity (= -0.509), Sleep Disturb (= -0.341), Sleep Impair (= -0.461), Depress (= -0.541), Anxiety (= -0.514), and Anger (= -0.431).

Systemic Sclerosis-Associated Interstitial Lung Disease (Fisher et al., 2019).

  • Excellent  negative convergent validity between Ability to Participate in Social Roles & Activities Scale (Social Role Domain) of PROMIS-29 and Saint George’s Respiratory Questionnaire Impact Scale (r  = -0.61).
  • Adequate  negative convergent validity between Ability to Participate in Social Roles & Activities Scale (Social Role Domain) of PROMIS-29 and Patient Global Assessment for Disease Severity, Visual Analogue Scale (r  = -0.40).        
  • Poor convergent validity between Ability to Participate in Social Roles & Activities Scale (Social Role Domain) of PROMIS-29 and Leicester Cough Questionnaire Social Domain (= 0.20).

 

 

Older Adults and Geriatric Care

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Internal Consistency

Older Adults with Multiple Chronic Conditions: (Huang et al., 2018, n = 1359, 89% White; mean age = 80.7 (6.9) years; age ≥ 80 = 66%; all had at least 2 chronic conditions).

  • Excellent internal consistency for Ability to Participate in Social Roles and Activities Scale (Cronbach’s Alpha = 0.93*)

*Scores higher than 0.9 may indicate redundancy in the scale questions.

 

 

Criterion Validity (Predictive/Concurrent)

Concurrent validity:

Older Adults with Multiple Chronic Conditions: (Huang et al., 2018).

  • Strong correlation between PROMIS-29 Ability to Participate in Social Roles and Activities Scale (Social domain) and Physical Function (= 0.72), and Fatigue domains (= -0.70).
  • Adequate correlation between PROMIS-29 Social domain and Anxiety (= -0.48), Depression (= -0.57), and Sleep domains (= -0.36).

 

 

Joint Pain and Fractures

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Minimal Detectable Change (MDC)

Fracture Patients: (Houwen, et al., 2023; = 100; mean age = 55.4 (12.6); female = 60%; operative treatment = 72%; mean time between initial test and follow-up = 64.5 (47.9) days; PROMIS-Computer Adaptive Testing (CAT) Ability to Participate in Social Roles and Activities (APSRA) version 2.0)

  • MDC (= 91) for PROMIS-CAT ASPRA = 1.7 points on T-score metric

 

 

Minimally Clinically Important Difference (MCID)

Fracture Patients: (Houwen, et al., 2023)

  • MCID (= 91, calculated using the logistic regression method) for PROMIS-CAT ASPRA = 3.2 (95% CI: 0.36; 6.49) 

 

 

Normative Data

Fracture Patients: (Houwen, et al., 2023)

 

Mean Change of PROMIS Ability to Participate in Social Roles and Activities (APSRA) Specified to Anchor Response

Answer on anchor question

n

Mean PROMIS-APSRA Change Score (SD) 

Much improved

5

10.2 (15.5)

Improved

25

12.0 (4.9)

Slightly improved

19

1.8 (3.4)

No difference

31

0.9 (6.4)

Slightly worse

7

-3.9 (1.8)

Worse

4

-9.3 (5.8)

Much worse

0

--

 

 

 

 

 

Cancer

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Normative Data

Breast Cancer: (Cai et al., 2021; = 633; mean age = 48.07 (9.97); age range = 23-76; simplified Chinese translation of PROMIS Ability to Participate in Social Roles and Activities 4-item Short Form: Ability-SF4)

  • Average T scores for Ability-SF4 = 51.49 (9.86)

 

 

Internal Consistency

Diverse Cancer: (Hahn et al., 2016; n = 5,301, 40% were age 65 or older; 42% were non-Hispanic White; 36% had an educational attainment of High school or lower; all within 6-13 months of first diagnosis of seven different cancer types; 10-item short form for Ability to Participate in Social Roles and Activities: Ability-SF10)

  • Excellent internal consistency for Ability-SF10 subscale: Cronbach’s alpha = 0.98*

*Scores higher than 0.9 may indicate redundancy in the scale questions.

 

Breast Cancer: (Cai et al., 2021; = 633; mean age = 48.07 (9.97); age range = 23-76; simplified Chinese translation of PROMIS Ability to Participate in Social Roles and Activities 4-item Short Form: Ability-SF4)

  • Excellent: Cronbach’s alpha = 0.88

 

 

Construct Validity

Convergent validity:

Diverse Cancer: (Hahn et al., 2016).

  • Excellent convergent validity between Ability-SF10 and PROMIS-29 Physical Function (= 0.765)
  • Excellent negative convergent validity between Ability-SF10 and PROMIS-29 scales:
    • Emotional Distress-Anxiety (= -0.614)
    • Emotional Distress-Depression (= -0.635)
    • Fatigue (= -0.784)
    • Pain Interference (= -0.679)
  • Adequate negative convergent validity between Ability-SF10 and PROMIS-29 Sleep Disturbance scale (= -0.495)

 

Breast Cancer: (Cai et al., 2021)

  • Adequate convergent validity between Ability-SF4 and PROMIS Emotional Support Short Form (= 0.54, < 0.001)
  • Adequate convergent validity between Ability-SF4 and Functional Assessment of Cancer Therapy-Breast (= 0.359, < 0.001)

 

Discriminant validity:

Breast Cancer: (Cai et al., 2021)

  • Significant (< 0.001) known groups validity of PROMIS ability to participate in social roles and activities short form in distinguishing between employed (mean = 49.67 (12.20)) vs. unemployed (mean = 50.35 (8.14)) persons
  • Excellent discriminant validity between Ability-SF4 and PROMIS Anxiety Short Form (= 0.08, = 0.045) 

 

 

Floor/Ceiling Effects

Diverse Cancer : (Hahn et al., 2016).

  • Adequate floor effects for all 10 Ability-SF10 items (<20%).
  • Poor ceiling effects for all 10 Ability-SF10 items (>20%).

Breast Cancer: (Cai et al., 2021)

  • Adequate floor (<5%) and ceiling (<4%) effects for all 4 items of PROMIS Ability to Participate in Social Roles and Activities short form

 

 

Mixed Populations

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Standard Error of Measurement (SEM)

Mixed Populations: (Hahn et al., 2014; = 2,208 English-speaking, 59.7% female, 49.5% age 60 or older; n = 644 Spanish, 63% female, 2% age 60 or older).

  • Excellent precision for English Ability to Participate in Social Roles and Activities scale with 93.1% of respondents having a SEM ≤ 3.0
  • Excellent precision for Spanish Ability to Participate in Social Roles and Activities scale with 90.2% of respondents having a SEM ≤ 3.0

 

 

Responsiveness

Mixed Populations: (Tamminga et al., 2020; = 209; mean age = 58 (15); age range = 21-85; male = 100 (48%); outpatients receiving multi-disciplinary rehabilitation in a large rehabilitation center; 8-item short form of PROMIS—Ability to Participate in Social Roles and Activities (APS))

 

PROMIS-APS T-scores1 at admission (T0) and discharge (T1)

Condition (n)

T0 Mean

T1 Mean

p

Effect size

Total sample (209)

42.4 (7.2)

43.6 (7.2)

0.004

0.16

Brain Injury (113)

42.7 (6.7)

44.0 (7.5)

0.016

0.17

Spinal cord & nerve injury (26)

42.5 (8.1)

42.5 (6.8)

0.987

NA2

Neuromuscular disorder (23)

42.6 (9.8)

42.9 (7.6)

0.812

NA2

Amputation (4)

50.1 (4.3)

45.3 (6.1)

0.273

NA2

Musculoskeletal condition (32)

40.6 (5.7)

42.8 (6.4)

0.012

 0.37

Heart or lung disease (11)

41.5 (7.5)

45.3 (7.1)

0.139

NA2

1Score range = 0-100; higher scores means better able to participate.

2Not analyzed as sample size too small to calculate effect size.

  • Small Change: Effect size < 0.2 for Total sample (0.16) and Brain Injury (0.17)
  • Moderate Change: Effect size ≥ 0.2 and < 0.5 for Musculoskeletal condition (0.37)

 

 

 

Organ Transplant

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Normative Data

Kidney Transplant Recipients: (Tang, et. al., 2019, n = 77, 58% male, mean age = 50.6 (17.0) years, adults who received a kidney transplant >30 days pre-enrollment )

Distribution of PROMIS scores: Ability to participate in social roles and activities

 

n

Mean

SD

Median

25%

75%

Min

Max

 PROMIS-29

168

52.97

9.26

51.6

44.8

64.1

29.0

64.1

 PROMIS-57

167

52.46

9.73

52.7

44.0

60.2

25.9

65.4

 

 

Test/Retest Reliability

Kidney Transplant Recipients: (Tang, et. al., 2019)

  • Acceptable for PROMIS-29 APSRA (n = 168): ICC = 0.70
  • Acceptable for PROMIS-57 APSRA (n = 167): ICC = 0.76

Internal Consistency

Kidney Transplant Recipients: (Tang et al, 2019)

  • Excellent for PROMIS-29 APSRA (n = 168): α = 0.95*
  • Excellent for PROMIS-57 APSRA (n = 167): α = 0.97*

*Scores higher than 0.9 may indicate redundancy in the scale questions.

 

 

Construct Validity

Convergent validity:

Kidney Transplant Recipients: (Tang et al, 2019)

  • Excellent convergent validity between PROMIS-57 APSRA domain and legacy Social Difficulties Inventory (r = ?0.700 (95% CI: ?0.774 to ?0.606))
  • Excellent convergent validity between PROMIS-29 APSRA domain and legacy Social Difficulties Inventory (r = ?0.695 (95% CI: ?0.771 to ?0.601))

 

 

Floor/Ceiling Effects

Kidney Transplant Recipients: (Tang, et. al., 2019)

PROMIS-57 APSRA

  • Floor: 1%
  • Ceiling: 23%

PROMIS-29 APSRA

  • Floor = 1%
  • Ceiling = 33%

 

 

Bibliography

Bartlett, S. J., Orbai, A. M., Duncan, T., DeLeon, E., Ruffing, V., Clegg-Smith, K., & Bingham, C. O., 3rd (2015). Reliability and Validity of Selected PROMIS Measures in People with Rheumatoid Arthritis. PloS one, 10(9), e0138543. 

Cai, T., Huang, Q., Wu, F., & Yuan, C. (2021). Psychometric evaluations of the PROMIS social function short forms in Chinese patients with breast cancer. Health and Quality of Life Outcomes, 19, 149.  .

Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., Cella, D., & PROMIS Cooperative Group (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health psychology: official journal of the Division of Health Psychology, American Psychological Association, 33(5), 490–499. 

Hahn, E. A., Kallen, M. A., Jensen, R. E., Potosky, A. L., Moinpour, C. M., Ramirez, M., Cella, D., & Teresi, J. A. (2016). Measuring social function in diverse cancer populations: Evaluation of measurement equivalence of the Patient Reported Outcomes Measurement Information System? (PROMIS?) Ability to Participate in Social Roles and Activities short form. Psychological test and assessment modeling, 58(2), 403–421.

Hahn, E. A. et al. (2023). PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study. Journal of Cardiac Failure, 29(10), 1398-1411. 

Houwen, T., Theeuwes, H. P., Verhofstad, M. H. J., de Jongh, M. A. C. (2023). From numbers to meaningful change: Minimal important change by using PROMIS in a cohort of fracture patients. Injury, 54, 110882.  .

Huang, W., Rose, A. J., Bayliss, E., Baseman, L., Butcher, E., Garcia, R. E., & Edelen, M. O. (2019). Adapting summary scores for the PROMIS-29 v2.0 for use among older adults with multiple chronic conditions. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, 28(1), 199–210. 

Fisher, C. J., Namas, R., Seelman, D., Jaafar, S., Homer, K., Wilhalme, H., Young, A., Nagaraja, V., White, E. S., Schiopu, E., Flaherty, K., & Khanna, D. (2019). Reliability, construct validity and responsiveness to change of the PROMIS-29 in systemic sclerosis-associated interstitial lung disease. Clinical and experimental rheumatology37 Suppl 119(4), 49–56.

Kasturi, S., Szymonifka, J., Burket, J. C., Berman, J. R., Kirou, K. A., Levine, A. B., Sammaritano, L.R., Mandl, L.A. (2018). Feasibility, Validity, and Reliability of the 10-item Patient Reported Outcomes Measurement Information System Global Health Short Form in Outpatients with Systemic Lupus Erythematosus. The Journal of Rheumatology, 45(3), 397 404.

Tamminga, S. J., van Vree, F. M., Volker, G., Roorda, L. D., Terwee, C. B., Goosens, P. H., & Vliet Vlieland, T. P. M. (2020). Changes in the ability to participate in and satisfaction with social roles and activities in patients in outpatient rehabilitation. Journal of Patient-Reported Outcomes, 4:73. .

Tang, E., Ekundayo, O., Peipert, J. D., Edwards, N., Bansal, A., Richardson, C., Bartlett, S.J., Howell, D., Li, M., Cella, D., Novak, M., Mucsi, I. (2019). Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients. Quality of Life Research, 28(3), 815-827.

Terwee, C. B., Crins, M. H. P., Boers, M., de Vet, H. C. W., & Roorda, L. D. (2019). Validation of two PROMIS item banks for measuring social participation in the Dutch general population. Quality of Life Research, 28, 211-220. .

Terwee, C.B. & Roorda, L.D. (2023). Country-specific reference values for PROMIS pain, physical function and participation measures compared to U.S. reference values. Annals of Medicine, 55(1), 1-11.